- Had a clear MRI in December.
- I see my oncologist every other month.
- Get a monthly Zoladex injection. In. ma. belly!
- Doing the Tamoxifen thang.
Not Today, Cancer
Flipping cancer the bird since 2012.
What Does Grief Look Like Now?
Three Weddings And A Funeral
"Could we have a Halloween party for Ingrid?"
It felt like he knew he wouldn't make it until October. And maybe he just wanted one last stab at
But then, minutes later, he'd refer to some future event with giddy anticipation. Not at all like someone who was planning to die in a few days. Like, for instance, his baby sister's wedding that took place a couple of weeks ago. He was so excited to see her walk down the aisle.
I remember sitting at the dining room table with Paul on one of his last nights. He had a photograph of his youngest sister in his hands and he was saying, "She is so beautiful. Isn't she so pretty, Liz?"
People tend to speak favorably of the dead, but I am only being sincere when I say I was tremendously lucky to have been Paul's wife. His siblings were lucky to have had him as a brother. His friends were lucky to have been witnesses to any one of his (possibly intoxicated) impersonations of a French boarding school headmaster (long story). I won't say his parents were lucky to have had him as a son because *ahem* they had a major hand in molding Paul into the Paul that he was, so actually—he was the lucky one there.
So Paul, I just wanted to let you know—your sister was a lovely bride. All FOUR of your sisters were lovely. Your brothers weren't half-bad either. Ingrid and her cousin made the most darling flower girls. And the DJ was out. of. this. world.
A small handful of Ingrid's bajillion cousins |
Guys, enjoy your trick-or-treaters. And hey! Do me a solid and save me any Junior Mints. You can have all of my Almond Joys and Mounds and whatever other candy bars decide to be gross by having coconut in them.
Also, to Paul's baby sister: I'm sorry if this makes you cry. But Paul loved you quite a lot and I dunno. Maybe it's good for you to hear that again. Don't be mad, pleaseeeeeeeee k love you bye.
Grief, Kayaking, And A Happy Farewell To Summer
If we're going with the "grief hits in waves" analogy, then this past week was a tsunami. It's been a relentless onslaught of heaviness around here, hit after hit after hit. It's all part of the process, they say, so I'm trying to roll with it and let the emotions fill me up, do their thing, and go from there.
One thing I've learned while navigating this boggy terrain, is that grief is not a straight path. It's not linear, it's not chronological. Things do NOT get easier as each day passes. They get harder. Then a little easier. Then back to hard. Then the world explodes and I'm heating up Campbell's soup for dinner and sobbing into Paul's hoodies.
Last weekend, Ingrid and I took a road trip out east to Waterford, NY for the 8th Annual Kayaking For Meso fundraiser. This event is particularly dear to my heart. Paul and I made the trip three years ago, when Ingrid had just turned one. We painted our canoe in the Meso Foundation's signature light blue color, and I held our not-yet-walking babe in my lap while Paul paddled us the seven or so miles down the Erie Canal. (Hard to imagine him with that kind of strength.)
Kayaking For Meso 2015 |
This year's kayakers paddled in memory of my sweet Paul and Sarah Simso-DeMaria, another young woman who passed away from mesothelioma last year. Sarah was just lovely, and we had the privilege of meeting her and her husband at a Meso Symposium in 2015.
Despite the cold temps this year, it was an incredible event. I can't think of a more fitting tribute to Paul's memory. Aside from his family, being on the water was one of his great loves.
Kayaking For Meso 2018 |
We were spoiled with a comfy ride on the pontoon boat this time around. |
Ingrid and I ended the weekend on what should have been a high note: an afternoon at The Strong National Museum of Play in Rochester. That place, for the record, is something else. Really special. The mini Wegmans area was a favorite.
And yet, I left feeling more deflated than ever. I couldn't even keep it together long enough to get past the highway tollbooths without tears. Why yes, I'm crying. But I'm FINEEEE. Totally 100% OK with life and everything. Just the ticket if you would, kind sir.
I'm guessing my sadness was triggered by an unfortunate blend of dreary weather, the onset of a nasty cold (thank you preschool germs!), and a restless sleep the night before. And maybe OK. Also because I'm totally not fineeeee or OK with life and everything. Not at all. And being in a museum swirling with dads helping their daughters build castles and pregnant moms and siblings and all that noise and then there's just me, alone, watching my daughter play, alone, and that's what I felt: so alone.
And before you're all: but Liz, you're not alone! You have friends and family and neighbors and all these people loving you and Ingrid and helping you out. And, guys, that's awesome. I appreciate every single one of you and every single thing people have done for us—big and small. Really, I do. I am so beyond blessed it's borderline ridiculous.
But. I miss my husband. There is nothing, NOTHING, that can ever fill that hole.
I love watching Ingrid explore and discover and do all that great kid stuff. I love taking her on trips and reading to her and listening to her butcher the lyrics to The Greatest Showman. But I miss sharing that stuff with her dad. Yes, I can share those things with other people. And that is fine and dandy, but it is NOT the same.
I missed the amused smiles we'd have shared when an incredulous Ingrid asked if an animatronic Giant was "real or fake." I missed ordering Paul a strawberry milkshake to go with our pair of chocolate ones. I missed his stream of ornery remarks about all the kids running wild. (Although more known for his laid-back vibe, I can assure you Paul's attitude often crossed into what I affectionately referred to as "Early-Onset-Grumpy-Old-Man-Syndrome".)
Most of all, I missed my husband when a couple of snooty girls refused to play with my daughter. There's no need to go into details, but basically, my bruised heart got all torn up watching two 5-year-olds tell my kid to "go away! We don't want to play with you!" Ingrid, cool kid that she is, walked away entirely unfazed by this snub. Her sensitive mama...not so much. Paul would have known exactly the right thing to say, though. He would have known just how to snap me out of my funk.
That's the thing about having a committed partner. They know you better than any other living soul, and it's sort of their job to take care of things when your sensitive self can't stop crying over mean little girls. And that's gone forever and I'm not OK with it, OK?
All in all, I'm glad for this summer to be over. As soon as September hits, every living soul is all: "can you believe how fast summer flew by?!?" And I'm over here like: Really, how was that for you? Because OHMYGAWD this summer went so slooooooooooow.
Not that it was all terrible or depressing. In fact, I don't think I've ever crammed so much activity into one season. This summer was not without its memorable moments. But fly by, it did not.
You hear that, Buffalo winter? Bring it. I'm ready for you. (Did I just say that? Must be the grief talking. I'm powerless here.)
xoxo